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Is there a good site on-line for the families who have someone suffering from an inoperable tumor? Our 6 year old granddaughter was diagnosed last week with one that is causing fluid pressure build up, so they immediately made a new hole to replace the one that was blocked by the tumor. She is out of immediate danger, but faces chemo and/or radiation treatment for the rest of her life. They give her 10-20 years depending on controlling the tumor. It appears to be a low grade, slow growing one, pending final lab results, so we are grateful for that.

I don't have the actual name of the tumor yet, will get it when I can from our son.

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