333 Posted August 27, 2010 Posted August 27, 2010 (edited) Hi all, People around the globe know this, but Americans and Isrealis don't. High Intensity Focused Ultrasound, called "HIFU". My husband got prostate cancer and we live in Colorado, but a friend told us about HIFU, so we found it on the web and booked it in Mexico with an American doctor who flies down there every weekend to treat men. We met the doctor the night prior to treatment, the next day hubby was put to sleep to prevent movement. It took 2 hours, no cutting involved, no pain, then I waited for him to wake up and we went to the beach and out to dinner. There are about 30 American doctors who fly out of the country to treat men on weekends using this, and local doctors everywhere use HIFU. HIFU is in clinical trials, but I didn't want to wait for the approvals, which will take another 2 years. We booked with Dr. Scionti, he's done about 700 men in 6 years, a real sweetheart. We've got several friends who have also gone to Mexico with him, all report being absolutely thrilled they found him and International HIFU. These doctors also take along an anesthiesologist, their nurses, a mechanic to monitor the machine, it's very professional and treatment is at a perfect hospital. My husband suffered no side effects, a little loss in the erectile dept. but it soon repaired itself with the help of 5mg Cialis for a couple months, the blood vessels can get crimped, but Cialis holds them open until they heal. Don't think this is an easy treatment for the doctor! It takes skill and lots of experience, only book with a well experienced doctor. The Chinese and Europeans are treating all organ confined cancers with this. The Chinese have treated 40,000 women for breast cancer....when will America, the land of the free and home of the slaves, catch up? Edited August 27, 2010 by 333
Moontanman Posted August 27, 2010 Posted August 27, 2010 333, you state My husband suffered no side effects, a little loss in the erectile dept. but it soon repaired itself with the help of 5mg Cialis for a couple months, the blood vessels can get crimped, but Cialis holds them open until they heal. Does your husband still ejaculate when he orgasms?
333 Posted August 27, 2010 Author Posted August 27, 2010 (edited) NO! and I think it great, no more mess, he said it felt funny at first, but it didn't take much to get used to, he still orgasms just as hard as before. The gland is still there, it's just a shriveled up prune now, which is why the blood vessels may get crimped, as they are attached, at least they aren't cut. . Edited August 27, 2010 by 333
losfomot Posted August 27, 2010 Posted August 27, 2010 NO! and I think it great, no more mess, it said it felt funny at first, but it didn't take much to get used to, he still orgasms just as hard as before. The gland is still there, it's just a shriveled up prune now, which is why the blood vessels may get crimped, as they are attached, at least they aren't cut. I'd call that a side effect.
333 Posted August 27, 2010 Author Posted August 27, 2010 If you treat prostate cancer then there's no more ejaculation, if you live with it you can keep your cream.... Do you know the possible side effects from surgery or radiation? diapers (both ends), ED, and other things....I researched it when hubby got it, oh my, it's depressing to read what men go through. It's a crime hifu isn't FDA approved yet. I figure the more of us know about this (all doctors know as it is in clinical trials, but they won't tell you unless you ask, "what is hifu?"), the sooner it will be approved. Stop the suffering...
Moontanman Posted August 27, 2010 Posted August 27, 2010 333, the extreme side effects you speak of are possible with all the treatments for prostrate cancer, with complete removal you don't have to worry about the cancer coming back, with the rest of them there is the possibility of the cancer coming back. And not having your "cream" is a side effect I'd like to avoid, not every one thinks of ejaculation as messy, but not at the risk of dying. BTW the blood vessels inside the prostrate have nothing to do with an erection, it's nerve damage that causes erectile dysfunction and the High Intensity Focused Ultrasound therapy you are touting is close to the same as radiation and can destroy the nerves of the penis that control erection as well. The High Intensity Focused Ultrasound heating of the prostrate might be better than radiation or at least similar but robotic assist prostratectomy has less or at least similar long term side effects than any other method and the cancer cannot return if it was confined to the prostrate... I have prostrate cancer and I am looking to find the best therapy with minimal side effects, so far robotic assisted laproscopic surgery seems to be the best possibility long term for someone as young as me... http://www.medicalnewstoday.com/articles/152901.php There is a significant lack of good quality outcomes and efficacy data as patients often refuse to enter randomised controlled surgical trials. In our hands, HIFU was unable to match traditional treatment modalities (minimally-invasive radical prostatectomy, external beam radiotherapy or brachytherapy) for oncological efficacy. In addition it generated significant and devastating complications in some patients. We would urge urologists against commencing a HIFU programme until high quality long-term data becomes available as we seriously question its safety and ability to cure localised prostate cancer.
333 Posted August 28, 2010 Author Posted August 28, 2010 I am sorry to hear of your condition. I am not a professional, but it has been years since my husband was treated and all went well. I also have 8 friends who had hifu and all went well with them. The establishment is against hifu, surgeons & radiologists will lose tons of money when it is approved. My only goal here was to let people know that there is another choice, and as I said, when more of us know it will speed up approvals, and the more experience they have the better the results. The results when anything is new can be crummy. I would refuse to enter a trial too. I thought robot surgery meant a higher rate of side effects over open. Surgery is not the panacea you think, we have friends who were told the cancer was confined, but it spread after surgery, then they had radiation. I volunteer at the hospital and a urological nurse told me if her husband got cancer they wouldn't do anything, they'd rather wait it out as it can take 25+ years to kill and she has seen too much. Now, however, as she knows us and the other guys in town who had hifu & she tells everyone about it. Yes, I have read about side effects after hifu, but I do not know anyone, and I read that there's a 3% failure rate, I've even heard of a failure rate of 15%, that is why I said to make sure your doctor has had lots of experience. But you could do hifu again, when it's approved it won't be such a big deal to be retreated. They are doing trials on men whom radiation failed them using hifu, the success rate is 80%. You could still ejaculate after HIFU if you only had half of the gland cooked, we have two friends who had that done. You won't be able to ejaculate after surgery. I think the nerves are outside the prostate gland, not inside, yes they can be damaged with hifu, but not cut, so repair is possible. These trials don't list the stats months out after the nerves have healed. Nothing is a guarantee, we all know that. Ultrasound doesn't harm tissue that it travels through, my husband didn't have any pain at all afterwards. It only cooks hard tumors. It's a horid disease, and I wonder if you are going in for surgery too soon, I know we were in a hurry, as it's normal to just want it out of you, but my nurse friend says there's years to wait to be treated.
Moontanman Posted August 28, 2010 Posted August 28, 2010 Well your nurse friend is incorrect in her assertion that it can wait, i have an aggressive form of the disease, i cannot wait and i certainly cannot afford to go to Mexico and have something done my insurance, such that it is, will not cover.... Also drawing conclusions based on anecdotal evidence is often misleading, i have talked to many men who had the surgery done, and robotic assisted is the best way, and they have no problems at all long term.... A few weeks with a catheter seems like a small price to pay for life....
StringJunky Posted August 28, 2010 Posted August 28, 2010 Well your nurse friend is incorrect in her assertion that it can wait, i have an aggressive form of the disease, i cannot wait and i certainly cannot afford to go to Mexico and have something done my insurance, such that it is, will not cover.... Also drawing conclusions based on anecdotal evidence is often misleading, i have talked to many men who had the surgery done, and robotic assisted is the best way, and they have no problems at all long term.... A few weeks with a catheter seems like a small price to pay for life.... Here's the UK's NICE view on HIFU in .pdf form you might find interesting . They oversee and approve (or not) all clinical treatments here and what circumstances they are allowed to be used in.. http://www.nice.org.uk/nicemedia/live/11128/31191/31191.pdf http://www.nice.org.uk/nicemedia/live/11128/31190/31190.pdf 1
333 Posted October 13, 2010 Author Posted October 13, 2010 There was a Mexican doctor who was at my husband's treatment, he has been at all of Scionti's treatments--for 6 years, our receipt says that he was the performing doctor and that Scionti was the technical assistant. It's Mexican law that a Mexican is the doctor, but who knows except them who was actually the treating doctor, we don't. However, after meeting him I thoroughly trust him, he was wonderful, and I just heard from a girl whose husband was treated by him in Puerto Vallarta. His name is Carlos Garcia MD, board certified urologist, he charged $15,000. (he doesn't need to pay into the American system--we are funding the clinical trials). The hospital was happy to take Visa. Her husband is doing perfectly and they know a guy who was treated 5 years ago by Dr. Garcia and he is also doing perfectly. You can reach him at: (Puerto Vallarta, Mexico) 52-322-221-2777 e-mail: drcgarcia@gmail.com
Mr Rayon Posted October 13, 2010 Posted October 13, 2010 I heard that masturbating also reduces prostate cancer.
StringJunky Posted October 13, 2010 Posted October 13, 2010 I heard that masturbating also reduces prostate cancer. Bugger me...you are right.....gotta go.... http://www.newscientist.com/article/dn3942-masturbating-may-protect-against-prostate-cancer.html
Moontanman Posted October 13, 2010 Posted October 13, 2010 I heard that masturbating also reduces prostate cancer. Yeah, active sex life, dark beer, lots of hot peppers in my food, i did it and still....
333 Posted October 15, 2010 Author Posted October 15, 2010 The cheapest HIFU that I've found is in Italy where they have socialistic medicine, $6,000. HIFU is the government's gold standard. They also have HIFU in Russia, Iran, Malaysia, Turkey, China.... everywhere but here and Isreal. We'll get it once everyone knows about it and demands it.
333 Posted September 20, 2011 Author Posted September 20, 2011 This thread was in my inbox like there is a reply, but I don't see one, anyway I thought I'd say hi....another year has gone by and my husband is still in great shape. We are very grateful that we found out about HIFU and had the nerve to go to Mexico for treatment. We have several friends who also chose to go to Mexico for treatment and they are happy about it. I read that in India and China they are treating almost all cancers with ultrasound (high intensity focused ultrasound). It's the future but America is stuck in the "make more money" hole.
StringJunky Posted September 20, 2011 Posted September 20, 2011 This thread was in my inbox like there is a reply, but I don't see one, anyway I thought I'd say hi....another year has gone by and my husband is still in great shape. We are very grateful that we found out about HIFU and had the nerve to go to Mexico for treatment. We have several friends who also chose to go to Mexico for treatment and they are happy about it. I read that in India and China they are treating almost all cancers with ultrasound (high intensity focused ultrasound). It's the future but America is stuck in the "make more money" hole. There was a spam link and it was removed.
Maryjane Posted October 11, 2011 Posted October 11, 2011 Prostate cancer has become one of the dangerous threat for everyone. It has become one of the prevalent disease. As the cancer advances it can even spread beyond the prostate into the surrounding tissues. Prostate cancer can also spread even throughout the body, such as the bones, lungs, and liver. The biggest problem with prostate cancer is that the symptoms and signs are often seen when the cancer reaches the advanced stage. The following site has the detailed information about prostate cancer. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001418/
333 Posted October 11, 2011 Author Posted October 11, 2011 Actually the biggest problem is the over hype of the diesease, as most men die with it, instead of from it. It is a very slow growing cancer, it takes more than 20 years to spread & become painful, that's why the USPSTF (U.S. Preventive Services Task Force) recommend men don't even get yearly tested, it instills fear and when the test is postiive men rush out and get surgery, which most often leaves them in diapers &/or with erectile dysfunction, and it doesn't even insure that the cancer is gone, some have the cancer reappear, then it's deadly....when if they had waited they may have died and never known they had it. The other biggest problem is the money in it, if we had HIFU like the rest of the world, men could get treated and not worry about incontinence or ED.
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